January 2013
1 post
Music Therapy →
October 2012
1 post
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Updates: Surgery
I forget that people don’t really know the whole story. After my dad had a stroke he had brain surgery. There was swelling in his brain (Feb 9) and they took a piece of his skull and put it in his stomach. They put the skull in his stomach rather than freezing it because of the length of time they expected to have to wait for the swelling to go down. Now he will be having his second surgery...
September 2012
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Some days you just need to hug your dad and...
have him tell you that you are a “super genius” that you are beautiful and that you can do anything and have the answers on how to deal with everyone and how to start back drawing again and tell you you are an awesome poet and that he’s proud of you…
or even just to tell you that you look a hot mess when you do and that you need to get better organized and that your room...
August 2012
5 posts
““In your experience of the world, how do people change?”
“Well, it has...”
– Tony Kushner, “Angels in America, Part Two: Perestroika” (via singularnarrative)
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Happy Birthday Huff, I love you.
“I never said you mean the world to me / maybe it’s best that you never know.” - The Roots
We are ever brutal to those who serve and love us in silence - the book of tea.
I sprained both of my ankles the day before father’s day. The worst part of that was the relief I felt. Not that I had to see him, but I just couldn’t think of what to do. In the course of...
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June 2012
4 posts
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Tyshia: How are you?
Huff: That's a good question.
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Looks May Be Decieving
So this is another post about the random things in my head. You aren’t obligated to read these. I will understand. Truly.
1. There needs to be an It Get’s Better-Type things for Stroke Survivors. Like a collection of stories. If you look things up you find many blogs that are someone sharing their own story. They can be very helpful it’s just I really wish I could find...
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Journal: 6/3/2012 Update
How’s Huff?
I saw my dad on May 31st.
Twas exciting. I didn’t expect to see him. I had been working for an internship all day and I thought it would be too late for me to go. It was a pleasant surprise
It was an eventful visit.
- I saw my father tired in a new way. He wasn’t groggy tired he was physically tired. He has been up all day and I could feel it in his hands. When I...
May 2012
9 posts
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Journal: 5/30 Update - Too Sweet Don't Cry Readers...
Writing here makes me feel better, and think more clearly, so I think I’ll be doing this more often. In fact I’m going to have another post tonight after this.
I saw my dad on the 26th . [And my brother is just now coming back from seeing him tonight] It was an extremely interesting experience. I went with my brother, my dad’s friend Tyshia and her son. Most of the time when I...
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When all you want is your daughter but...
Ugly Truth Time.
I don’t think about my father as often as i would like to. I don’t visit (or want to visit) as often as I should.
When I mention this to my friends ,along with the things I am thinking about, these are the responses that I get:
It’s OKAY (healthy) for you to need some time to focus on you (your work your interests) that is completely fine
It’s alright...
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It was the best of times It was the worst of...
A couple things I’ve been thinking about. (I apologize in advance. It’s early but I needed to get that out. Bear with me, as you guys always do, when I make no sense.)
1. No one has any clue what a stroke looks like. People don’t seem to get it. AND It’s completely impossible to describe what THIS stroke looks like. When I say things like “He’s doing better...
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April 2012
3 posts
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Happy Birthday Earnestine,
My mother would have had her 60th birthday yesterday. April 28th, 1952.
I got a chance to hand out/talk with people who are really cool people yesterday. Family/Friends. Even if a few of them didn’t know how much it meant I had a good time. Then me and Q were able to reflect.
I was hoping that when I started typing I would be able to create something quotable about life. Sadly I have...
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Journal 4/1/2012: Don't Call This An Update
I haven’t posted in a while. Nothing new to report so it’s not a real update. Still working with the insurance trying to figure out what is going on. We figured out/have an idea what the problem is but sadly that doesn’t mean things are taken care of yet.
Me and Q are on the way to see my dad at the nursing home. I’m hoping that my dad is in the spirits to watch a movie....
March 2012
27 posts
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Ani Difranco-Kazoointoit Lyrics.
As you know..I love quotes and songs and poetry…(and art and crafts and scrapbooking) they are keeping me going right now.
i love us both but i don’t feel good so i keep pulling over and looking under the hood i love us both but i’m at wit’s end where does your compromise begin and mine end? i love us both but what world’s it gonna be? the one according to...
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Jan 18th 5:29 PM Update
My brother has been on the phone forever and in the last two days we have gotten better news.
The insurance can cover my father (til June I believe). They just never knew about everything that happened with his stroke. They were told he was being treated by the nursing home from “diabetes and anemia” nothing about his stroke was given. SO if they had known none of this would be a...
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Dreams and Stress and Surgery and Updates and...
I love long titles they are pretty amazing.
On Dreams and Stress …
Me and my brother are under so much stress right now with everything that is happening with my father that we are dreaming about it. Nothing needs to be interpreted we know whats up.
My dream was that my father died. Me and my father’s best friend were crying and all of a sudden he says Thank You. In my dream the...
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Art improves stroke survivors' quality of life →
Dr Vellone says: “Stroke survivors who saw art as an integrated part of their former lifestyle, by expressing appreciation towards music, painting and theatre, showed better recovery skills than those who did not.”
“In our study the ‘art’ group of patients showed a comparable clinical picture to the ‘no art’ group,” he adds. “This is important because it means that patients belonging to the...
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Journal: 3/22/2012 9:56 P.M. Update
I’m so tired. So much has happened. As my brother said (twice now) “All we want is normal abnormality.” Since I posted my father has been moved from his hospital to a nursing home. (That in and of itself is a story.) Now that he is at that nursing home (which is sadly farther out than we would like) he seems to be getting some decent care. The rehab is really nice. I met the...
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“I’ve been feeling lately I’m maybe more resilient than I had thought.”
– HappyThankYouMorePlease
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“And he said, You have great potential in this lifetime. The key to your life is...”
– Annie {Happythankyoumoreplease} (via skylightjazz)
[I have kind of been living by this movie quote for a while.]
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Journal: 3/9/2012 3:04 PM Update
My dad had his stroke February 7th. It a monthiversery, I guess. Two days late but the nineth (in the morning) is when my father had his brain surgery so there are many things happening. Many moments I am re-living right now.
My father used to know sign language “back in the day.” He has since lost it, but my whole life he has signed the alphabet. You may think this isn’t a...
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“Water won’t ever accomplish the end, no matter how much you cry. Flood’s not the...”
– Harper, “Angels in America” (via nextstop—everywhere)
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Journal: March 6, 2012 11:30 am Update
They decided it was bettr. To do a CAT scan instead of a MRI. The doctors didn’t do until 7 today. My Brother and I didnt get to the hospital til about 8:30 we come in and his bed is gone. They did find tooth abseses whether that is the cause or not of his fever is still in question. I am glad my brother decided to have them do the scan. The doctors told us they didn’t think it was the...
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Journal: March 5, 2012 - 4:22pm
Okay, the doctors are going to do an MRI of my fathers jaw. There is a chance that a tooth problem is causing the fever my dad has. I am interested to see what happens.
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“So I guess I’m doing ok. Except for, of course, I’m going fucking nuts.”
– Angels in America (via howlinrockland)
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My Father, James Huff Has Had A Massive Stroke
Please Help Please Reblog
*An example of the art and influence he has had.
forhuff.tumblr.com
I have created a blog to get my thoughts out about what is happening, to talk about how he is progressing and so I can post all the happy memories my family has had so I never forget. My father mother and whole family are brilliant artist who I want the world to know about. Please follow if you...
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